My family and I are heading to #Melbourne in January, not just for a visit but to live. The process of packing up your entire life and shipping it to another country is...challenging. I'll post more about the exact circumstances of that at a later date - but suffice it to say, I have *thoughts* to share about the broken social contract in Aotearoa (and how it affects people with rare disorders specifically.)
I'm absolutely gutted to be leaving my community behind, including my job where I work with volunteers and youth workers around the country to support our rangatahi. I would prefer to be staying, but I can't get the treatment I need and my symptoms are progressing. It's a choice of staying here and having a long, painful death - or moving to Australia, being paid more, and living a full life into my old age. So...yeah. It's become an obvious choice.
As a result, one thing I'm going to need is a new job. Community-based, for-purpose work is my preference. Any tips, connections, or thoughts are welcome!